Why a laryngeal cleft group?

Why a laryngeal cleft group?

This international laryngeal cleft support group is to help, create more awareness for parents and their children on laryngeal cleft, to exchange experiences and info.
We truly believe in helping parents and their children who have laryngeal cleft. Because we too are parents with a son with laryngeal cleft in search of awnsers. Due to the fact there is little known about laryngeal cleft we started this website a few years ago.

Doctors were not able to give insight in the possible future development of this rare disorder. We hope we will find parents who are in the same desparate situation as we are. And want to share experiences and knowledge in order to be able to help our children.  Furthermore we made a facebook page and a Twitter account wich are free as well and accessible to everyone. This way we can create more awareness for parents and their children on laryngeal cleft, to exchange experiences and info.

So, when you have a child who has laryngeal cleft and you need more information and want to share experiences, you are more than welcome to jump in. In case you have any questions or want to help/ contribute in ane way, please contact me at laryngealcleft@gmail.com.

Have a great day!

Mark